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Faith's Lodge recommends the following websites dedicated to families of seriously ill children and bereaved parents and families.
Accurate Home Care
Accurate Home Care, LLC offers Private Duty Nursing and waivered services up to 24 hours-per-day, 7 days-per-week. They specialize in servicing the complex medical needs of both children and adults.
Brave Kids
www.bravekids.org
Organizational mission is to help children with chronic, life-threatening illnesses or disabilities.
Children's Cancer Association
www.childrenscancerassociation.org
Support, information and advocacy for children and families facing pediatric cancer.
Children's Cancer Research Fund
www.childrenscancer.org
Supports research and training at the University of Minnesota to prevent, treat, and cure childhood cancer and offers quality of life programs for pediatric cancer patients and their families.
Cystic Fibrosis Foundation
www.cff.org
Dedicated to supporting those facing cystic fibrosis, advocacy and research.
Ella's Halo
www.ellashalo.com
Ella’s Halo is a non-profit organization that was developed to help improve the quality of extended stays in Twin Cities’ Neonatal Intensive Care Units (NICU).
Our mission is carried out by providing a variety of items to NICUs, babies, and their families to help impart a better sense of home while in the hospital.
Ella’s Halo accomplishes this through fundraising efforts, community events and educating the public about life in the NICU.
Great Escapes
www.starbright.org/minnesota
Great Escapes offers a variety of activities such as movie screenings, circus trips, mother-daughter makeovers, sporting events, picnics and more. All events are held in the Twin Cities metro and allow families the opportunity to relax and enjoy themselves while someone else takes care of all the planning.
HopeKids
http://www.hopekids.org/
Provides ongoing events and activities and a unique support community for children with cancer and other life-threatening conditions.
The Lupus Foundation
www.lupusmn.org
Furnishes educational material and provide programs of hope, strength and empowerment.
Make-A-Wish
www.wishmn.org
The Make-A-Wish Foundation is dedicated to granting the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy! In fulfilling wishes, the Make-A-Wish Foundation of Minnesota puts emphasis on the pure joy of a wish come true... it has been said that doctors provide the medicine and we provide the magic.
Miracles of Mitch
www.miraclesofmitch.org
Dedicated to supporting families of children facing pediatric cancer.
Muscular Dystrophy Association
www.mdausa.org
Provides access to educational materials and support networks in local communities.
Pediatric Home Service
http://www.pediatrichomeservice.com
Provides specialized healthcare services to technology-supported children - in their homes with their families.
Ronald McDonald House Charities of the Upper Midwest
www.rmhtwincities.org
Ronald McDonald House provides a home away from home for families with children who have life-threatening illnesses.
Starlight Starbright Children's Foundation
www.starlightmidwest.org
Dedicated to brightening the lives of seriously ill children and their families by providing a broad array of both in-hospital and outpatient programs designed to enhance their ability to cope with the stress of illness. Serves Illinois, Indiana, Michigan and Wisconsin.
SuperSibs
www.supersibs.org
Strives to support, honor and recognize brothers and sisters of children with cancer.
Wonders and Worries
www.wondersandworries.org
Provide psychosocial support for children, youth and families coping with chronic and life-threatening illnesses.
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A Place to Remember
www.aplacetoremember.com
Books, support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.
Allina Hospitals and Clinics
www.allina.com/ahs/grief.nsf/page/related_infant_child
Comprehensive listing of bereavement resources and grief support groups in the Twin Cities Metro and surrounding areas.
American SIDS Institute
www.sids.org
Strives to provide family support through crises phone counseling, grief literature and referrals.
Babies Remembered
www.BabiesRemembered.org
A website designed to help parents and families who have experienced the devastation of a perinatal loss and infant death including: miscarriage (including ectopic pregnancy and blighted ovum), stillbirth, SIDS or early infant death.
Bereaved Parents of the USA
www.bereavedparentsusa.org
Aids and supports bereaved parents and families coping with their grief following the loss of a child.
Camp Amanda Minnesota
www.campamandaminn.com
A camp for children and teens, kindergarten through high school, who have experienced the death of a parent, sibling or significant person in their lives.
Centering Corporation
http://www.centering.org
Provides materials, education and resources for the bereaved.
Compassionate Friends
www.compassionatefriends.org
National organization assists families toward the positive resolution of grief following the death of a child of any age and provides information to help others be supportive.
Do's and Don'ts for Friends of Bereaved Parents
http://www.slideshare.net/JOSHFoundation/dos-and-dontsfor-friends-of-bereaved-parents-3995619
The Dougy Center for Grieving Children
www.dougy.org
Provides grief support services to children or families who have experienced a loss.
Infants Remembered in Silence (IRIS)
www.irisremembers.org
Dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy or from stillbirth, and all other types of infant and early childhood death.
KidsAid
www.kidsaid.com
Online support group for children dealing with loss. It includes artwork, stories and poems.
Minnesota Department of Health
http://www.health.state.mn.us/divs/chs/osr/stillbirth.html
Instructions and information on how to apply for a legal Certificate of Birth Resulting in Stillbirth. Does allow for retroactive filing as well.
MISS Foundation
www.missfoundation.org
National volunteer based organization committed to providing crisis support and long-term aid to families after the death of a child from any cause.
Missing Grace
www.missinggrace.org
Minnesota organization that serves to help families on their journey through pregnancy and infant loss, infertility and adoption.
Now I Lay Me Down to Sleep
www.nowilaymedowntosleep.org
Administers a network of nearly 3,000 volunteer professional photographers who, at a family's request, will come to your hospital or hospice location and conduct a sensitive and private portrait session.
One Bright Star
www.onebrightstar.org
One Bright Star's mission is to be a resource for families who have lost a child to death. The organization - located in Mankato, Minnesota - has created a unique star symbol to help recognize and support bereaved families with greater compassion.
Silent Grief
www.silentgrief.com
Online support for those who have suffered miscarriage and later child loss.
St. Mary's Grief Support Center
www.stmarysduluth.org
Provides counseling, support and education to individuals of all ages who are affected prior to or after the death of a loved one.
Survivor Resources
www.survivorresources.org
Dedicated to helping families and loved ones recover from the shock of homicide, suicide and sudden accidental death.
Youth Grief Services
www.ridges.fairview.org/Community_Health/grief/index.asp
Offers a range of support and education services for grieving children and for the adults who care for them.
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